Friday, February 21, 2014

Humira Progress Report

I had my first dose of Humira on Tuesday.  Lucky for me, Humira is used in both Crohn's Disease and Ankylosing Spondylitis so I get a "two birds with one stone" store of deal.  Since it was my initial dose I had to do four injections, then in two weeks I will do two, and then just one injection every two weeks after that.

I had asked for the pre-filled syringes instead of the injections pens since everyone I talked to said that the pens hurt more.  When I picked up my prescription I found that they had given me the pens.  I didn't want to wait, so I went ahead with the pens.  A nurse came to the apartment to train me on the injections and answer any questions I had.  I'm glad now that I got the pens instead because it wasn't particularly painful.  It did sting a bit but, but in the past I've had a really hard time psyching myself up to stab a needle in my leg. I had to do monthly B-12 injections for awhile and I spent more time prepping myself to actually get the needle in my leg then the actual injection. With the pen I just push the button and the needle pushes itself in a second later.

I read a lot about Humira before I started and the results were different for everyone. Some people had relief within days and for some it took months.  I'm not expecting any digestive symptoms to resolve quickly since even if the inflammation is reduced, the gut has to heal.

However, I have noticed a couple of things.  The first thing I noticed is the super achiness and tenderness in my lower back is pretty much gone.  The pain was pretty much constant, so I didn't even notice at first that it was gone.  The second thing is that my morning stiffness has been gone the last two days.  It had gotten to a point that it would take over an hour for my back and hips to loosen up in the morning so I could go about my day.  This morning when I got up, it was just... easy.  I got up and that was it.  No groaning, no bending weirdly to pick up stuff.  It was pretty exciting!

So far I would say the Humira is starting to work or that I'm experiencing the best placebo effect. I'm looking forward to my other issues disappearing as time goes on.  Of course, I'm still going to try and help things along with my diet, exercise, and physical therapy plan.  I'm also secretly hoping that the massive reduction in chronic inflammation will help me shed some extra fat. I've read quite a bit that chronic high inflammation in the body makes it difficult to lose weight.  I feel like that with how much I have been exercising coupled with my fairly healthy diet I should be losing more fat.  I've tried managing the inflammation before with natural anti-inflammatories like turmeric and omega-3's, but I think it was just too much.

I'm super optimistic and hoping that it continues to help!

Edited to add: I forgot to mention that in all of this, my doctor changed my diagnosis from Ulcerative Colitis to Fistulizing Crohn's Disease.  Luckily, I haven't had any real small bowel involvement.  He just think that the fistula coupled with the AS diagnosis it probably is Crohn's.

Monday, February 17, 2014

Cold Snap

I forgot to mention that it was pretty cold here a couple of weeks ago.  I think it was too cold for snow, but we got plenty of ice.


This was a fountain walking down into Chinatown.  The ice looked pretty neat and the other little pond was frozen over.

February Ipsy Glam Bag Review

Still don't feel very good.  I did my first workout in a week today and it was difficult.  I should start my Humira tomorrow which hopefully will start bringing down the inflammation.

On to fun things! I got my February Ispy bag today.  It was Valentine's Day themed, so everything is pink and purple.


The bag is a nice plain hot pink, but it has a nice silky lining.  I received J.Cat false lashes, Pop Beauty lip gloss, Zoya nail polish, City Color Be Matte Blush, and something called Velvet Gel.  I think the total value of everything in the bag was around $35-40.  I don't think I'll every use the lashes, but you never know.  The lip gloss is a nice color for me.  The blush is a little brighter in person, but I think the color works as long as I apply it sparingly.  I love the color of the nail polish.  I'm happy to get polishes as that is the one thing I'll probably be changing out a lot.  I'm not 100% sure what the Velvet Gel is for, but it mentions age spots.  I don't have any of those, but maybe it will work on dark under eye circles.

This was a nice bag. I'm excited to see what they have for March!

Thursday, February 13, 2014

Jumping through hoops

I haven't really had much to say recently.  I haven't been feeling great and I had some issues regarding my TB skin test.  The test was negative, but due to some weird communication breakdown between my doctor's office and the TB clinic, I had to do more testing and wait.  It's all good now, but frustrating at the time.  I should start Humira next week after the nurse comes to train me on self injection.  It works out for the best as I caught a cold or something and should wait until it clears up before starting an immune suppressant.


Tuesday, February 4, 2014

Catching up

It seems like the last week and a half has just flown by.  I went down to Seattle the last two weekends. On the 27th I met up with some friends to go to the Lovesick Expo which is a more offbeat wedding show.  I was a little disappointed, because I didn't realize quite how small it would be, but it was still fun.

On Sunday we drove down to watch the Super Bowl with some friends and cheer on the Seahawks.  I love the way that the 12th man came together to root for them.

I was feeling mostly better, but a day of pizza and beer did me no favors.  I went and got my TB skin test today, so as long as it's negative on Thursday I can start my Humira. I can't wait! I'm so ready to feel better.

Saturday, January 25, 2014

A literal pain in the ass

My workout plans were derailed for the last couple of weeks.  I had a pretty bad flare up in my left sacroiliac joint.  The results in the muscles in the area become so tense that I feel like I have a charley horse in my butt.  In the past these flares have only lasted a couple of days, but this time it lasted almost two weeks. Ugh.  It sucks because it's pretty painful and the muscles are weak.  My physiotherapist worked on the area, I had a massage, and did several types of stretching to get the area to loosen up, but it just took its sweet time.  I'm super thankful that you can get muscle relaxers over the counter up here.  

So I lost two weeks of proper workouts.  I did some modified stuff, but for the most part I'm super disappointed.  I'm trying to make you healthy body, stop rebelling against me!

Thursday, January 16, 2014

Ipsy Glam Bag Review

It's kind of weird, I've never really been into makeup or hair before.  I wore some makeup everyday, but it wasn't ever a lot and I wasn't particularly skilled in applying it. And *gasp* there are some days I leave the house and don't wear any makeup!  However, some time in the last couple of months a switch flipped in my head and I'm really interested in learning more about hair and makeup.  It would be nice to be able to do something to my hair besides putting it in a ponytail.

I decided that if I was going to do this, I should invest in some higher quality items so I went into Sephora.  Holy cow! Good makeup is fricking expensive!  So I got color matched (which I highly recommend), bought some foundation, and walked away kind of sad since I'm way too cheap to buy a lot of their stuff to experiment with. 

Then I found ipsy.  I've always been somewhat enamored with subscription boxes.  It's like getting a little surprise present every month.  Ipsy seemed like a fun way to try new types of makeup for fairly cheap ($10 a month).  I'm justifying this as a good thing for my mental health.  I have something silly to look forward to, I feel like it's a reward, and, the best part, it's not food :)