Friday, February 21, 2014

Humira Progress Report

I had my first dose of Humira on Tuesday.  Lucky for me, Humira is used in both Crohn's Disease and Ankylosing Spondylitis so I get a "two birds with one stone" store of deal.  Since it was my initial dose I had to do four injections, then in two weeks I will do two, and then just one injection every two weeks after that.

I had asked for the pre-filled syringes instead of the injections pens since everyone I talked to said that the pens hurt more.  When I picked up my prescription I found that they had given me the pens.  I didn't want to wait, so I went ahead with the pens.  A nurse came to the apartment to train me on the injections and answer any questions I had.  I'm glad now that I got the pens instead because it wasn't particularly painful.  It did sting a bit but, but in the past I've had a really hard time psyching myself up to stab a needle in my leg. I had to do monthly B-12 injections for awhile and I spent more time prepping myself to actually get the needle in my leg then the actual injection. With the pen I just push the button and the needle pushes itself in a second later.

I read a lot about Humira before I started and the results were different for everyone. Some people had relief within days and for some it took months.  I'm not expecting any digestive symptoms to resolve quickly since even if the inflammation is reduced, the gut has to heal.

However, I have noticed a couple of things.  The first thing I noticed is the super achiness and tenderness in my lower back is pretty much gone.  The pain was pretty much constant, so I didn't even notice at first that it was gone.  The second thing is that my morning stiffness has been gone the last two days.  It had gotten to a point that it would take over an hour for my back and hips to loosen up in the morning so I could go about my day.  This morning when I got up, it was just... easy.  I got up and that was it.  No groaning, no bending weirdly to pick up stuff.  It was pretty exciting!

So far I would say the Humira is starting to work or that I'm experiencing the best placebo effect. I'm looking forward to my other issues disappearing as time goes on.  Of course, I'm still going to try and help things along with my diet, exercise, and physical therapy plan.  I'm also secretly hoping that the massive reduction in chronic inflammation will help me shed some extra fat. I've read quite a bit that chronic high inflammation in the body makes it difficult to lose weight.  I feel like that with how much I have been exercising coupled with my fairly healthy diet I should be losing more fat.  I've tried managing the inflammation before with natural anti-inflammatories like turmeric and omega-3's, but I think it was just too much.

I'm super optimistic and hoping that it continues to help!

Edited to add: I forgot to mention that in all of this, my doctor changed my diagnosis from Ulcerative Colitis to Fistulizing Crohn's Disease.  Luckily, I haven't had any real small bowel involvement.  He just think that the fistula coupled with the AS diagnosis it probably is Crohn's.

Monday, February 17, 2014

Cold Snap

I forgot to mention that it was pretty cold here a couple of weeks ago.  I think it was too cold for snow, but we got plenty of ice.


This was a fountain walking down into Chinatown.  The ice looked pretty neat and the other little pond was frozen over.

February Ipsy Glam Bag Review

Still don't feel very good.  I did my first workout in a week today and it was difficult.  I should start my Humira tomorrow which hopefully will start bringing down the inflammation.

On to fun things! I got my February Ispy bag today.  It was Valentine's Day themed, so everything is pink and purple.


The bag is a nice plain hot pink, but it has a nice silky lining.  I received J.Cat false lashes, Pop Beauty lip gloss, Zoya nail polish, City Color Be Matte Blush, and something called Velvet Gel.  I think the total value of everything in the bag was around $35-40.  I don't think I'll every use the lashes, but you never know.  The lip gloss is a nice color for me.  The blush is a little brighter in person, but I think the color works as long as I apply it sparingly.  I love the color of the nail polish.  I'm happy to get polishes as that is the one thing I'll probably be changing out a lot.  I'm not 100% sure what the Velvet Gel is for, but it mentions age spots.  I don't have any of those, but maybe it will work on dark under eye circles.

This was a nice bag. I'm excited to see what they have for March!

Thursday, February 13, 2014

Jumping through hoops

I haven't really had much to say recently.  I haven't been feeling great and I had some issues regarding my TB skin test.  The test was negative, but due to some weird communication breakdown between my doctor's office and the TB clinic, I had to do more testing and wait.  It's all good now, but frustrating at the time.  I should start Humira next week after the nurse comes to train me on self injection.  It works out for the best as I caught a cold or something and should wait until it clears up before starting an immune suppressant.


Tuesday, February 4, 2014

Catching up

It seems like the last week and a half has just flown by.  I went down to Seattle the last two weekends. On the 27th I met up with some friends to go to the Lovesick Expo which is a more offbeat wedding show.  I was a little disappointed, because I didn't realize quite how small it would be, but it was still fun.

On Sunday we drove down to watch the Super Bowl with some friends and cheer on the Seahawks.  I love the way that the 12th man came together to root for them.

I was feeling mostly better, but a day of pizza and beer did me no favors.  I went and got my TB skin test today, so as long as it's negative on Thursday I can start my Humira. I can't wait! I'm so ready to feel better.

Saturday, January 25, 2014

A literal pain in the ass

My workout plans were derailed for the last couple of weeks.  I had a pretty bad flare up in my left sacroiliac joint.  The results in the muscles in the area become so tense that I feel like I have a charley horse in my butt.  In the past these flares have only lasted a couple of days, but this time it lasted almost two weeks. Ugh.  It sucks because it's pretty painful and the muscles are weak.  My physiotherapist worked on the area, I had a massage, and did several types of stretching to get the area to loosen up, but it just took its sweet time.  I'm super thankful that you can get muscle relaxers over the counter up here.  

So I lost two weeks of proper workouts.  I did some modified stuff, but for the most part I'm super disappointed.  I'm trying to make you healthy body, stop rebelling against me!

Thursday, January 16, 2014

Ipsy Glam Bag Review

It's kind of weird, I've never really been into makeup or hair before.  I wore some makeup everyday, but it wasn't ever a lot and I wasn't particularly skilled in applying it. And *gasp* there are some days I leave the house and don't wear any makeup!  However, some time in the last couple of months a switch flipped in my head and I'm really interested in learning more about hair and makeup.  It would be nice to be able to do something to my hair besides putting it in a ponytail.

I decided that if I was going to do this, I should invest in some higher quality items so I went into Sephora.  Holy cow! Good makeup is fricking expensive!  So I got color matched (which I highly recommend), bought some foundation, and walked away kind of sad since I'm way too cheap to buy a lot of their stuff to experiment with. 

Then I found ipsy.  I've always been somewhat enamored with subscription boxes.  It's like getting a little surprise present every month.  Ipsy seemed like a fun way to try new types of makeup for fairly cheap ($10 a month).  I'm justifying this as a good thing for my mental health.  I have something silly to look forward to, I feel like it's a reward, and, the best part, it's not food :)

Wednesday, January 15, 2014

Physiotherapy

Or as it's known in the States, physical therapy.  I'm not sure why it's called something slightly different up here.  Anyway, I had my second visit today and it's been very helpful.  The biggest concern I have at the moment is making sure that my spine remains flexible and that I avoid developing the "hump" as I get older.  My physiotherapist has shown my some really great exercises and stretches, but probably the most important thing I've learned so far is how to be aware of my posture.  I didn't even realize that when I was standing I would lock my knees.  Almost 30 years old and I have to relearn how to stand up properly.  I am making an effort to "soften" my knees whenever I'm standing still and I think it's starting to work.

I also have the get the sides of my hips strengthened. The physiotherapist told me that when you see women walking down the street doing the "sexy sashay", letting one hip dip really low when taking a step, it's actually putting a large strain on all those muscles. It makes me laugh, the things we women do to look sexy.

If anyone is in Vancouver and looking for a physiotherapist, I highly recommend Gastown Physio and Pilates. They are amazing!

Friday, January 10, 2014

Xbox One Fitness Review

We lucked out and my fiance received an Xbox One a couple of months ago.  One of their apps is "Xbox Fitness" and I've been working out with it the last week or so.

The workouts themselves are not unique to the Xbox.  They are videos that are available other places such as the 10 Minute Solutions workouts, P90X, and Jillian Michaels. Most of the workouts are free with an Xbox Live Gold subscription.  The interesting thing is the way that the workouts are set up with Kinect. You make sure the camera is pointed where you are going to be working out and it tracks your movements as you workout along with the video.  It can tell how intensely you are performing the the workout and offers suggestions such as "work those legs" if you aren't going as deep into your lunges as you could.  You are awarded points and bonuses based on how well you follow along and compares your points to the average of your age group.

All in all, I'm enjoying using this quite a bit.  The workouts are very good at getting your heart rate up and I'm dripping sweat after 10 minutes.  It's nice getting the immediate feedback that you need to move your arms more or that your leg work is good.  I'm also a fairly competitive person and like the game aspect of it where you earn points and have challenges to complete during the workout.

There are a couple of negatives so far. I had some issues with the Xbox One where when I would try to play a workout, it would crash back to the home screen.  I ended up unplugging everything and plugging it back in again so it would work. Today it crashed back to the home screen when I was in the middle of a workout, which was frustrating.  I'm hoping that this is not a hardware issue and is fixed in the next update.  You also need a lot of room to perform the workouts, which I don't have in our tiny apartment.  I'm making it work, but it's a little cramped.  Once you hit play, the first few seconds of the video are cut off so the trainer is already in the middle of the warm up exercise when the video starts.  It's not a huge deal, but it's a little jarring.

Even with its quirks, I think that Xbox One Fitness is an excellent non-gym alternative for the traditional workout.  The time flies by pretty quick and the competitiveness of point earning is good motivation to do just one more workout.

New Year's Resolutions

One of my New Year's resolutions was to ramp up my workout routine.  I've been exercising pretty consistently since the beginning of November (except the week I was sick and a couple of days around Christmas) for about 40ish minutes a day.  The usually consisted of about 10-15 warm up cardio, about 20 minutes of body weight exercises, and about 10 minutes of strength training. The past week and a half I've added 10-20 minutes of high intensity cardio depending on how I'm feeling.  I have to be careful that nothing is high impact and even with that my right hip was very tender last night.  This is in addition to the walking I do everyday just to get around town.

Here is my current workout routine:

Monday, Wednesday, Friday-
  • 10 minutes warmup boxing (WiiFit)
  • 20 minutes bodyweight and yoga mix (WiiFit)
  • 10 minutes arm strength training 
  • 10-20 minutes higher intensity cardio (Xbox One video-review to come)
Tuesday, Thursday- 
  • 10 minutes warmup boxing (WiiFit)
  • 20 minutes bodyweight and yoga mix (WiiFit)
  • 10 minutes leg strength training 
  • 10-20 minutes higher intensity cardio (Xbox One video)
Saturday- 
  • 10 minutes warmup boxing (WiiFit)
  • 20 minutes bodyweight and yoga mix (WiiFit)
  • 10-20 minutes higher intensity cardio (Xbox One video)
Sunday
  • Rest day, but still active like taking a brisk walk
With my visit to the physical therapist I'm also adding in the exercises she has recommended and I think that one of those days is going to be replaced with an hour of pilates with her. 

I know that I've been building muscle since November, so I'm hoping that soon some weight will come off to make it easier on my hip joints.  I'm not obese, but I carry a lot of weight on my thighs so I look weirdly disproportionate since I'm short. 

So far I'm proud of myself for sticking to this!  

Wednesday, January 8, 2014

A Brief Sunny Interlude

It was sunny and gorgeous here this weekend.  I've been really good about exercising everyday, but Sunday I decided to go walk instead of "working out."  Still a bit of exercise, but it was a nice rest day after a hard week. 

I went back along the sea wall as it is a really nice walk with plenty to see. I didn't take any pictures out onto the water as the sun was shining very brightly.

This is a sculpture of the Great Blue Heron. 



Some nifty rocks that someone set up. 

Friday, January 3, 2014

Good news everyone!

I'm not dead.  I was just kind of depressed and lacked any motivation to do anything when I got back from visiting my family.  I've got myself out of my funk for the most part, so I will stop being lazy and commit to posting again for my own mental health.

Two weeks before Christmas I ended up with some good news/bad news.   I went to a rheumatologist and got a diagnosis for my back/hip problems.  Turns out I have ankylosing spondylitis, which sucks but at least I know what is going on now. 

PS. I did not complete a Whole30 back in August, because when I came back to BC I fell into old habits of eating to make myself feel better.  I've actually been working through those feelings in the last few months and I think I'm doing really well. 


Sunday, August 4, 2013

My second Whole30

Tomorrow I will be embarking on my second Whole30.  This is a 30 day clean eating challenge.  It's not necessarily a weight loss challenge though some participants do see weight loss. It's more about giving your body a break and letting it heal.  I do have to make some adjustments since I have the j-pouch.  I can't do a ton of raw vegetables.  Eating a bunch of raw veggies is basically a waste of time and money for me as they just don't digest well.  I highly recommend reading through the program and pretty much through Dallas and Melissa Hartwigs' site. They are brilliant.

Here is a quick rundown of what kinds of things I'm avoiding:

  • Dairy- I'm pretty certain I'm lactose intolerant anyway, but oh how I love cheese. 
  • Grains- I mostly avoid these already, but sometimes the call of pizza or a buttery croissant is too loud. 
  • Grain/seed based vegetable oils- I don't cook with these at home but almost all restaurants use them.
  • Sugar- All added sugar including my beloved maple syrup. Juice counts as this as well. 
  • Legumes- I can't digest them so this one is easy.  Peanuts are also legumes though :(
  • Alcohol- Goodbye wine. I don't drink a lot normally because I dehydrate so quickly but I do love some red wine.  Or margaritas. 

I'm going to be driving to the other Vancouver down in Washington (the original Vancouver btw) to visit my family.  I'm hoping to convince my sister to do the Whole30 with me because she has some crazy health issues of her own.  I would like to be able to document everything, but it might have to be after the fact due to spotty computer access. 


UPDATE 1/3/14: Obviously, this did not happen as I was sad and lazy. 

Friday, August 2, 2013

Capilano Suspension Bridge and Stanley Park

Last weekend one of my close friends from Seattle came up to visit for a few days.  We spent most of the time exploring by foot and by the time she left I had acquired a couple of blisters.  The first day we walked around the False Creek Seawall from David Lam Park to Granville Island and then took the ferry back across False Creek. 

The second day we took a shuttle up to Capilano Suspension Bridge. My sister and I went here back in March and I thought it was pretty cool. Unfortunately I forgot that this was a weekend in summer rather than a weekday in early spring.   It was jam packed with people and I felt bad for bringing everyone up there.  It was still pretty though. 

The shuttle dropped us off near Stanley Park on the way back into Vancouver so we hiked around there for a bit before heading to Second Beach and taking the Seawall back home. 



I forgot to take any pictures during both of those walks except for when we saw an owl in Stanley Park.
 



On Sunday we were dead on our feet, so we drove up the Sea to Sky highway towards Squamish again. This is the view from this cute little coffee shop along the highway. 



We then went to Shannon Falls Park. Again, super busy but gorgeous. 




Monday before she left we went and walked around Gastown and Chinatown. Once again, I didn't take any pictures except for this funny sign.  By this time, I think a combo of dehydration and eating super bad over the weekend made things very uncomfortable for me and I was running to the bathroom every hour or so. Lesson not learned, of course. I'm not sure why I keep doing this to myself.  



Here are a couple of pictures of my cat in our rooftop garden :)


Thursday, July 25, 2013

Alice Lake Park

My fiance and I have decided that each weekend we are going to pick someplace awesome looking and go hiking. Last Saturday was the first hike and I picked the Four Lakes Trail at Alice Lake Park.  The trail is about 6 km and took about 2 hours.  The hike itself was pretty easy, except we started from the wrong direction so the very first part of the hike was very steep.  I guess it's for the best as it got my heart rate up pretty good.

It was my first time driving up the Sea to Sky highway and it was gorgeous.  The water was this beautiful greenish blue and the view of the mountains was amazing. I'm glad we got there nice and early because there was plenty of parking and it was full when we left.

Enjoying our picnic lunch at Alice Lake. 




Right at the beginning of the trail we saw a ghost plant. I've only ever seen one once before.  They are cool plants that get their energy via parasitic action on certain types of fungi that are symbiotic with trees. 



Edith Lake which is the second lake on the Four Lakes trail. For some reason I didn't take any pictures at either Fawn Lake or Stump Lake. 



 The north part of the trail runs along the Cheekye River before it turns down to Stump Lake. 



It was a great day and I'm looking forward to many more hikes.

Two weeks later

Ugh, I didn't realize it has been two weeks since I've posted anything.  I still haven't been feeling very well.  The hardest part for me is that I've felt completely exhausted for no apparent reason and have had no motivation.  I'm doing a little better this week and have been able to be a little more active. My diet took a huge nosedive and I was eating a lot of gluten-y sugar-y junk food.  I've got it back on line this week and that might be the reason why I've been feeling better.

A friend of mine from Seattle is coming up this weekend and I'm really looking forward to it.  Hopefully my energy level continues to rise.

Wednesday, July 10, 2013

Rough Week

The past week or so has been a giant pit of suckiness.  I haven't been feeling well digestive wise and then the muscle spasm problems I have been having flared up again. The combo of having to go to the bathroom forty thousand times a day plus having your muscles freak out and spasm when you try to move is just the worst.  Luckily I think I'm coming out of it.

I went and got a massage yesterday.  Getting therapeutic massage for me is more like an hour long torture session. Pretty much all my muscles are tense and tender to the touch.  I usually feel better afterwards so the pain is worth it I suppose. The massage therapist thinks that most of my issues stem from my weak postural muscles.  So, gotta strength train those back and shoulder muscles along with my core. A few years ago I took a hard fall on my right hip and every since then my hips and back have been out of whack.  I wish I had gone to the chiropractor right away, I probably could have prevented these problems by not walking weird for three years.

Wednesday, July 3, 2013

Doing aloe shots

I got my bottle of aloe juice the day before yesterday.  I've been taking it a couple of times a day.  It still tastes vile, but luckily my college days have prepped me for taking shots of gross things.  Just treat it like Jager: plug your nose, get it down quick, and have something on hand to chase it with.

In which Canadian healthcare wins me back

Three weeks before we moved up here I ended up in the emergency with a ridiculous amount of pain. We had gone to the beach to visit my fiance's mother and by the time we got back I felt like I was dying.  I delayed going to the ER until the next morning and only went because I could not sit still the pain was so intense.  I am very stupid for waiting.


Monday, July 1, 2013

Managing Ulcerative Colitis with diet

A large part of my experiment revolves around my diet.  I can't even remember how I stumbled upon a post of Mark's Daily Apple about inflammation, but it completely changed my outlook on how to manage my disease. I then borrowed a copy of The Paleo Solution: The Original Human Diet by Robb Wolf.  I loved it because he actually gets into the nitty gritty science of what is causing so many health issues.  If you get bored with the super in-depth explanations, I highly recommend Practical Paleo by Diane Sanfilippo.  She does a great job laying all the information out in an easy to understand way.

Anyway, like I said before, the big thing I try to stay away from is gluten.  I saw a huge improvement when I cut gluten completely out of my diet.  It is slowly creeping back in and my digestion is suffering for it.  I didn't really have a problem avoiding it until we moved up here, but there are just so many good and new things to eat!

I read this article from World Journal of Gastroenterology and it also has given me some guidance in both diet and supplementation.  The major beneficial dietary components it recommends are probiotics, omega-3 fatty acids, antioxidants, and aloe.  This seems like an opportunity to add another goal to my list!

Consume probiotics, omega-3 fatty acids, antioxidants, and aloe every single day. 

I have a prescription strength probiotic that I've been taking, but I'm not very consistent with it.  Same thing with my omega-3 supplement (and now I'm out and haven't gotten a new bottle).  I love pretty much all seafood and try to eat as much as possible so hopefully that's helping.  As far as antioxidants go, I try to include a lot of different fruits and vegetables in my diet.  However, my big problem is that I don't really digest higher fiber foods very well seeing how I'm lacking a large intestine.  I think that I need to be more vigilant with taking digestive enzymes when I eat to get the most benefit from my food.

I haven't tried aloe since it was forced on me when I first was diagnosed with UC.  It was pretty horrible if I remember correctly.  I guess I'm going to have to suck it up and go get a bottle. Ugh.

I've also been taking an encapsulated whole food based multivitamin.  Without a colon (meaning short bowel transit time) I'm at risk for developing nutritional deficiencies.  This is something I have been pretty good about doing since last year.  I was having a lot or problems with just being exhausted all the time and then my hair started falling out it huge clumps. I went to my doctors a couple of times, but they said that my blood work was fine.  I finally went to a naturopath and she looked at me, bent my nails, and said I was probably anemic.  She did the blood work for that and she was totally right! I was severely anemic and therefore have been anemic for quite a while.  I can't believe the other two doctors I went to never checked for that.  She put me on a multivitamin and some extra iron.  I started feeling better a couple of months and my hair started growing back.  So I'm pretty much going to be taking a multivitamin until a doctor tells me to stop.

So there you have it.  The basis for my diet and supplementation.  I'll be tweaking things as I go along to account for my j-pouch (it doesn't like a lot of raw veggies) and how I react.  I'm still not looking forward to forcing down the sliminess that is aloe, but if it helps I can't complain too much, right?